Thursday, July 13, 2017

If Love Was a Cure

I read a blog written by a mother with an Autistic son. Her son is almost 7 years old. She describes him as on the severe end of the spectrum. He's nonverbal and not potty trained. She is starting in-home ABA* therapy, a new diet, and new supplements. She is ahead of me in this life of Autism.  I find comfort in a lot of what she says because many of her struggles are my struggles too.

I watched a video she posted of some "critics" accusing her of trying to CURE her son of Autism. She explains that she's not trying to cure him, she's trying to make his life better. My heart sank because I'm still in cure-mode. I am thinking that this early intervention will cure this baby. Is that even logical?  I have always described Asher as being on the mild end of the spectrum. Is he though?

He's nonverbal, but I think he will speak. He doesn't have meltdowns, he's social, he's loving... Where does that put him on this imaginary spectrum? How big is this freaking thing? Am I being realistic?

Will I be where she is in 4 years? My family has a long road of questions and trials. There are always more questions to be answered and we are finding that many of the answers are not what we want. We are also finding that many questions don't have answers. I don't like waiting to see what happens.  This is the most bizarre life. I go from encouraged and energized to helpless and hopeless in a minute's time. Uuuugghhh!!!

I pretend a lot and I also breakdown a lot. I am strong, but I am SO WEAK. I'm starting to see that this isn't a phase, but it is a life--my life, his life, our lives.

*ABA therapy (Applied Behavioral Analysis) The approach breaks desirable behaviors down into steps and rewards the child for completing each step.

This is a great blog. She started with no readers and now, she has thousands. 

https://www.findingcoopersvoice.com/

How can this sleeping baby be so complicated?💙




3 comments:

  1. I have a friend that has a son with autism. He is 9 yrs old. He stayed the night with us this week because him and Brax are so close. As I said before, Brax has a lot of the same characteristics of a child on the spectrum. I have known this child since he was born and had his sister in class. I am blown away at his progress. He is super duper intelligent, his vocabulary is way better than mine could ever be, he has great manners and so many other great qualities! He still struggles of course. His mom has told me about his meltdowns but he is in therapy weekly and I cannot begin to tell you the difference I see in this child. Before his diagnosis he struggled because of course some just thought it was a behavioral issue. Now he is doing great! He doesn't even seem like the same kid! He still has the sweet spirit he always had but I couldn't have asked for a better child to stay the night with Braxton! So yes, Asher will be great! People will understand and they will be in awe of him just as I am with this child! You are doing everything you can to ensure he has a wonderful life! No child is normal, every child struggles in some way. This is Asher's path and he has a great mom and family to guide him and love him ❤️

    ReplyDelete
    Replies
    1. You're so sweet, Ashley! Thank you for the encouraging words. It really helps this momma out hearing positive examples of AWESOME, Autistic kids💙❤

      Delete
    2. You're so sweet, Ashley! Thank you for the encouraging words. It really helps this momma out hearing positive examples of AWESOME, Autistic kids💙❤

      Delete

Self Employed

I’m totally going to skip over the fact that the world has been swallowed up in a pandemic. We have been quarantined and sanitized. I have l...