Through dealing with insurance, Randy discovered that without a formal diagnosis, many services are not available for him. Because of Asher's age, a FORMAL diagnosis was never made. We have been treating Autism but someone important needed to tell the world. We were on a mission to make it official. It was D-Day for Asher---Diagnosis Day.
I was told weeks ago by his therapists that Asher must be reevaluated by his pediatrician in order to continue therapy. Ok, no problem. It's time for his wellness checkup anyway. I was also told that it had to be done by the 20th. I call for an appt., and the earliest he can be seen is the 19th. I like our pediatrician, but I only see her for Asher. My kids never get sick (knock on wood). I feel like she maybe could help us more. Maybe it's us. Maybe we need to help ourselves?? Anyway, Randy and I sat in the parking lot and finished a discussion that has gone on for months. We knew what we wanted to ask her. We were prepared. Well, she was not prepared because she wasn't there. We saw the APRN because my doctor was on vacation.
Frustrated. The only information we got was that Asher's ears looked perfect and he's off the charts in height and weight. I was told that the Dr. would have to sign his paperwork when she returned. That means no therapy until the doctor gets back from vacay. Under protest, the paperwork was completed. So, his therapy continues as scheduled. 😏 We were informed that his pediatrician wouldn't diagnose him anyway. This was news to us.
Today, Asher had his appt. with his neurologist. I really like this guy. He's older, British, and super smart. Randy brought up the subject of him labeling Asher as Autistic. I guess it's a little more common to do this because he just turned 3. The Dr. said no problem. He would make it formal and we would get more services this way. We left this appt. feeling more hopeful. We have a plan that incorporates more therapy along with some other changes we're looking into.
A better plan with a change in diet, specialists, and vitamins, along with the addition of essential oils, genetic testing, etc. are all in the works. I can't begin to tell you the amount of anxiety and confusion this whole system gives Randy and I. At times, I feel stupid. How are we supposed to know if no one tells us? When people say," you are your child's biggest advocate," that's no joke. It's up to us.
He had to get up early and show out for the doctor today.
Everything is good in Asher's world. 💙
Today, Asher had his appt. with his neurologist. I really like this guy. He's older, British, and super smart. Randy brought up the subject of him labeling Asher as Autistic. I guess it's a little more common to do this because he just turned 3. The Dr. said no problem. He would make it formal and we would get more services this way. We left this appt. feeling more hopeful. We have a plan that incorporates more therapy along with some other changes we're looking into.
A better plan with a change in diet, specialists, and vitamins, along with the addition of essential oils, genetic testing, etc. are all in the works. I can't begin to tell you the amount of anxiety and confusion this whole system gives Randy and I. At times, I feel stupid. How are we supposed to know if no one tells us? When people say," you are your child's biggest advocate," that's no joke. It's up to us.
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